September 19, 2023
Day + 151
Well, the news today wasn’t good. The cancer has, in fact, invaded my brain. It’s hard to predict how long I’ve got, but likely a few weeks or a couple months at best. I’ve had 4 lumbar punctures and a blood transfusion this afternoon. The team is discussing how to proceed. The palliative care team will see me tomorrow. Then, completing the . . .
September 16, 2023
Day + 148
After checking into my Kaiser Oakland hospital room yesterday morning on the 10th floor (penthouse!), things began to roll pretty quickly. Many tests (including COVID, several blood tests, two different sputum tests, lumbar puncture), a picc line put in and plenty of forms and reviews of all the meds I’m on.
I have to say . . .
September 14, 2023
Day + 146
The latest PET scan confirmed many new lesions throughout my bones. I'll be going into the Kaiser Oakland hospital starting tomorrow morning . I'll begin the newest treatment which could last 5-10 days depending on how it goes. Possible scary side-effects, so hoping for the best.
There was disagreement whether or not to do a . . .
September 10, 2023
Day + 142
Whew! So much is happening very fast.
Many of you have been texting, emailing and calling me. Often, you want to know what you can do.
I’m telling everyone not in the immediate area not to make any plans to come out and visit me later on in September or October – even if it’s for a short time outside on my deck. . . .
September 6, 2023
Day + 138
I've shared this with a few friends over the past few hours, but I figured I'd just put it out there. Some of this is repeated from my previous blog.
Last Friday during my exam by the Kaiser neurologist Dr. Samman, he found four cranial nerves that are affected: my left eye, right face, right forehead and right ear. . . .
September 2, 2013
Day + 134
More symptoms, more tests, more phone calls and texts to and from Stanford and Kaiser, more video and in-person appointments, and more pill sorting. It’s a wonder I can get anything else done like cooking, gardening, running errands, exercising, or just relaxing. Thank goodness my koi mostly take care of themselves.
. . .August 11, 2023
Day + 112
It was hard to decide which image to accompany this blog episode. The last few days (especially yesterday) were a combination of a swirling spiral and a voyage to the unknown.
Lots of things were packed in yesterday. After the housecleaners left, I had to go off to Kaiser Berkeley in the morning for my weekly . . .
